Technorati search

Monday, August 29, 2011

2nd Annual Zumbathon for Rett Syndrome

Below you will find just some of the facts about Rett Syndrome from the International Rett Syndrome Foundation:

1. Rett syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys.

2. Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or non-specific developmental delay

3. Rett syndrome is a developmental disorder. It is not a degenerative disorder.

4. Rett syndrome causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

5. Rett syndrome symptoms appear after an early period of apparently normal or near normal development until six to eighteen months of life, when there is a slowing down or stagnation of skills. A period of regression then follows when she loses communication skills and purposeful use of her hands. Soon, stereotyped hand movements such as handwashing, gait disturbances, and slowing of the normal rate of head growth become apparent. Other problems may include seizures and disorganized breathing patterns while she is awake. In the early years, there may be a period of isolation or withdrawal when she is irritable and cries inconsolably. Over time, motor problems may increase, but in general, irritability lessens and eye contact and communication improve.

These are just some of the facts about Rett Syndrome. There are people in the Lynchburg area who deal with this condition every day and they are asking for your help.

On October 15th, 2011, you are invited to participate in the 2nd Annual Zumbathon for Rett Syndrome. For $20 you can participate (and if you bring a friend you can take $5 off your donation). There will be three different class times available between 8 a.m, and noon and the event will be held at:

The Edge Martial Art Studio
20722 Timberlake Road
Lynchburg, VA 24502

You can call Rebecca at 434-841-1410 for more information. All funds raised will be sent to the International Rett Syndrome Foundation. Rebecca is the mother of Heather Anne, a local youngster who has been diagnosed with Rett Syndrome.

Take the time to make a difference. There is some exciting new discoveries being made towards a cure (you can read about them on the IRSF website). Instead of spending your Saturday morning having brunch somewhere, take that money and invest in the future - and have fun while doing it!


Post a Comment

<< Home